WARNING….boring health issues post!
The thing with grief is that talking about it helps, it clears the head, gets it out there to work out and deal with easier…I am good at that, I deal with my grief in the best way possible, creativity and writing/talking.
Unfortunately talking about my Rheumatoid and osteopenia does not help, talking about it is not going to fix a chronic disease. Each persons individual journey is different, what may work for one person may not for another…I feel I have tried them all. My rheumatoid is fine, at the moment under control, I thank modern medicine for this and take my many forms of medication routinely. But it’s the osteopenia that gets me, I am meant to do weight bearing exercise to strengthen my muscles to help my bones….and oh I am so lazy! But even when I do I seem to pay for it. It’s a catch 22, because of my rheumatoid eaten shoulder, the day after always hurts…so I will rest it and feel all boo hoo today, tomorrow I will go gently and remember to take it easy on that side….thank you for listening, I feel better now, maybe talking about it does help 😉
Rheumatoid update!Good news, my latest MRI has shown that the inflammation has decreased in my shoulder, no new lesions, so looking like it has settled down now due to the increase of my medications. Let’s hope it stays that way! It actual does feel so much better than two years early when we first started investigating why I was having so much pain in that one area. The damage is still there, but the pain is manageable 🙂 My bloods are all good, I feel good and at the moment everything is working as it should. I just need to keep eating healthy and keep active by walking, but I do need to increase my weight bearing exercise…one thing that I am very slack with, Any weight bearing exercise will be better than the zero I do at the moment….I will get there! Need to remember flu shots coming up and to get another bone scan in the middle of the year. So I am very happy 🙂
This is me, well part of me, Rheumatoid Arthritis, RA. An auto immune disease that targets the lining of the joints, called the synovial membrane, causing inflammation and joint damage. There is no cure and they do not know why people get it. But thanks to modern medication I can walk, sew, do normal household duties and look after my kids. I am one of the lucky ones, who found a great doctor early and found the right combination of medication. But my journey has only just began. It will change, this disease is with me for life and I hope to have a lot of years still to go, and with all medications and the way your body functions, things always change. But for now I take Arava daily, (side effect – diarrhoea) methotrexate weekly (side effect – nausea) followed by folic acid then each month I have my ejectable Simponi which is a biologic (they all suppress my immune system). Why am I showing you? Why bore you with medication and disease? Because I am not alone. So many people have hidden, silent illnesses that are treated with medication. Sadly sunshine and green smoothies will not cure all of these (they will help). Sadly so many of us look fine on the outside but are screaming with pain on the inside. Understanding these diseases is the only way to help, spreading awareness helps. So many people mix up osteoarthritis, normal wear and tear on you joints as you get older with RA, they are so wrong, even kids can get RA. Big hugs go out to all of you who suffer from silent illnesses, you are not alone x
I don’t talk about my Rheumatoid Arthritis much the last few years my grief has been in my mind more and talking about that helps. And I feel no one wants to hear about boo hoo health problems! But I do want to talk about it, it is who I am, it is apart of my life and it effects a lot of the things I do. I also know there are so many others who are effected by one type of autoimmune disease or a silent illness, and I truly believe talking helps, it’s nice to know you are not alone. I am now 45, I was diagnosed at 41, so my journey has only just begun. My mum also has RA she is now in her 11th year, she was ten years old than I when diagnosed, sadly her journey is filled with pain and suffering. Together we learn from each other about this strange disease that attacks your joints, causing pain and disfigurement. I believe, so far, I have been lucky, I have a wonderful doctor and I am on the right medication to control the disease. I can walk, sew, look after my family and live a normal life. I did have to leave work, waitressing was too demanding for me, but I am so lucky to have found sewing. My shoulder is the only joint, so far, to be greatly effected by the disease, I am due my third MRI at Christmas time to see how it has progressed. Because of my shoulder I do go gently in life, I try not to aggravate it, so no crazy adventures or silly housework! The medication is working, thank you to those who have alternate ideas, I think I have heard them all! I have looked into so many and have changed my diet and lifestyle. Unfortunately with autoimmune disease your body takes on other problems, either by the disease or from the medication. I also have osteopenia, which is one step up from osteoporosis, which was either brought on by the RA or mostly because I went through early menopause three years ago, that one I blame on stress, with what I went through with Sam. Hence the daily walks, vitamin D and the other routines I now do. So if you have read this far, thank you, life can hit you hard all at once! This has all happened over the last four years, I am only 45! I still have a lot of life to still enjoy, I just have a few more quirks to add to it! Thank you x