Each and everyone of my pinnys takes a piece of my heart with them when they head off to their new little owners. I don’t just buy a bunch of fabrics and power sew them in production line style. No, I sew them individually, each piece of fabric, in which ever way it makes its way to me, is loved and cherished. The first time I see it online or if I am lucky enough to recuse it from an op shop basket or when someone donates unwanted fabrics to me, my heart melts. The excitement of new pre loved or reclaimed fabric is so much fun! Then to put it all together, to mix and match, searching for that one piece you know you have, that will go perfectly with another piece. Then to see it come together so wonderfully. Like this one, different fabrics from so many different places, all joined together now, it’s magic! Can you feel the passion, the love, oh I adore them so!
To dream, to wish, to make goals…is to know you are alive, to know there is hope, changing your life for YOU.Our lives are full of dreams, they change from year to year…and sadly there are also nightmares, that come crashing in to our lives, ripping it apart and leaving you so raw and lost…but if you hold on to those dreams, even if they take on a new direction, you can get through those nightmares. Hold on to your dreams and they will lead you through the dark.
dream a little is my light, my peace, my hope, after the nightmare.
Do not give up on your dreams!
This is me, well part of me, Rheumatoid Arthritis, RA. An auto immune disease that targets the lining of the joints, called the synovial membrane, causing inflammation and joint damage. There is no cure and they do not know why people get it. But thanks to modern medication I can walk, sew, do normal household duties and look after my kids. I am one of the lucky ones, who found a great doctor early and found the right combination of medication. But my journey has only just began. It will change, this disease is with me for life and I hope to have a lot of years still to go, and with all medications and the way your body functions, things always change. But for now I take Arava daily, (side effect – diarrhoea) methotrexate weekly (side effect – nausea) followed by folic acid then each month I have my ejectable Simponi which is a biologic (they all suppress my immune system). Why am I showing you? Why bore you with medication and disease? Because I am not alone. So many people have hidden, silent illnesses that are treated with medication. Sadly sunshine and green smoothies will not cure all of these (they will help). Sadly so many of us look fine on the outside but are screaming with pain on the inside. Understanding these diseases is the only way to help, spreading awareness helps. So many people mix up osteoarthritis, normal wear and tear on you joints as you get older with RA, they are so wrong, even kids can get RA. Big hugs go out to all of you who suffer from silent illnesses, you are not alone x
I don’t talk about my Rheumatoid Arthritis much the last few years my grief has been in my mind more and talking about that helps. And I feel no one wants to hear about boo hoo health problems! But I do want to talk about it, it is who I am, it is apart of my life and it effects a lot of the things I do. I also know there are so many others who are effected by one type of autoimmune disease or a silent illness, and I truly believe talking helps, it’s nice to know you are not alone. I am now 45, I was diagnosed at 41, so my journey has only just begun. My mum also has RA she is now in her 11th year, she was ten years old than I when diagnosed, sadly her journey is filled with pain and suffering. Together we learn from each other about this strange disease that attacks your joints, causing pain and disfigurement. I believe, so far, I have been lucky, I have a wonderful doctor and I am on the right medication to control the disease. I can walk, sew, look after my family and live a normal life. I did have to leave work, waitressing was too demanding for me, but I am so lucky to have found sewing. My shoulder is the only joint, so far, to be greatly effected by the disease, I am due my third MRI at Christmas time to see how it has progressed. Because of my shoulder I do go gently in life, I try not to aggravate it, so no crazy adventures or silly housework! The medication is working, thank you to those who have alternate ideas, I think I have heard them all! I have looked into so many and have changed my diet and lifestyle. Unfortunately with autoimmune disease your body takes on other problems, either by the disease or from the medication. I also have osteopenia, which is one step up from osteoporosis, which was either brought on by the RA or mostly because I went through early menopause three years ago, that one I blame on stress, with what I went through with Sam. Hence the daily walks, vitamin D and the other routines I now do. So if you have read this far, thank you, life can hit you hard all at once! This has all happened over the last four years, I am only 45! I still have a lot of life to still enjoy, I just have a few more quirks to add to it! Thank you x